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If you wish to make a tax-deductible donation now, please click below or go to our donations page.
If you want to know about metachromatic leukodystrophy (MLD), you've come to the right place! We C.A.R.E., we welcome you, and we're glad that you found us!
Gene Therapy Clinical Trial
NOW RECRUITING ... pre-symptomatic late infantile and early/pre-symptomatic juveniles.
More information here.
NOW RECRUITING ... pre-symptomatic late infantile and early/pre-symptomatic juveniles.
More information here.
Often your arrival here comes at a time of great personal trauma due to a recent diagnosis or encounter with MLD. We want you to know that you can count on us for support, information and to help you get connected with others who are also on the MLD journey.
Late infantile families ...
Natural History studies are currently recruiting in North Carolina and Tübingen, Germany.
More information here.
Natural History studies are currently recruiting in North Carolina and Tübingen, Germany.
More information here.
we C.A.R.E. ... check out all we have to offer...
Compassion will take you to the MLD Family where you can connect with others.
Awareness is where you will find what is being done to increase knowledge of MLD and how you can help. Check out Research to find the latest in efforts to treat and cure MLD.
Education leads to MLD-101 where you will find a comprehensive, yet very readable, layman's overview of MLD.
The MLD Foundation is a non-profit 501(c)(3) organization and appreciates your generous support. Please check out our Fund-raisers and MLD Stuff in the boxes below:
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If you wish to make a tax-deductible donation now, please click below or go to our donations page. |
New Zealand & Australia MLD Family Conference™ planning is underway for the 26th of February and the 20th of March, 2011, respectively. Our US 2010 MLD Family Conference™ was August 6th & 7th in Cleveland, OH. More here. February, 2010 - Shire HGT has suspended their current intraveneous ERT development replacing it with their mothballed intrathecal program which is in pre-clinical animal test stages. More here. Jan, 2010 - Extraordinary Measures, a new film from Harrison Ford, documents the development of an enzyme replacement therapy for Pompe disease. More here. Oct, 2009 - Hunter Kelly Newborn Screening Research Program -The NIH established a formal program to carry out, coordinate, and expand research in newborn screening and to increase the number NBS tests, better understand the long-term effects of living with these conditions, and to foster the development of new treatments. More here. Sept, 2009 - Empowering Our Children radio interview with Christine Hoffman and Dean suhr. Listen here: Listen here. May 11, 2008 - GINA , the Genetic Information Non-discrimination Act, was signed into law. Learn more here. |
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